There will still be countless of doctor's visits and tests to be done, starting tomorrow with a bone marrow biopsy and a CT scan, followed by an MIBG scan next week. From now on she will have every month a doctor's check-up, once every 3 months a CT scan and most likely once every 6 months an MIBG scan. But no more gruelling chemo therapy or radiation treatment, no more operations and no more pills.Saskia also need to make a decision about the removal of her port line. We thought she couldn't wait to see that thing removed, but it is slightly more difficult than that. That port has given her comfort during her treatment. Through her port all the chemo was administered, but she also got all the good stuff. Every time when there was something not right in between hospital visits, the first thing she got hooked up to was her port. She hates it, but she also is comforted by it.
Saskia is excited about the period that lays ahead. She is also a little anxious. It is like starting a new life in a different place wondering what the other kids would think about the "newcomer".
We as a family are equally excited and anxious at the same time. We have been ripped apart and brought together again, we have been through periods of pure evil together whereby we couldn't bear to be around each other and we have been through periods of pure joy and belly laughter.
Fact is that we as a family have shared an experience which will have an effect on how we live the rest of our lives. We cannot ever go back to the "normal" we had before we embarked on this journey.
This coming year will be a year whereby we all try to get our lives back in balance. There will be a new "normal". What that is and how that will look like is still to be seen, but I reckon it's gonna be awesome!
