Pyrene's Hair Donation

No news is good news and as our last post was around 10 months ago, all must be well and all is well. I am sure that Saskia will write something herself soon, but I just wanted to update you on something her amazing little sister Pyrene did.

Pyrene is 9 years young and had hair like Rapunzel! She loved her long hair and it was her distinct feature. Her hair was the longest in our house, in her class, of her school and most likely of our general neighborhood as well.

Her hair was amazing and as you can see from this photo, it was very artistic as well. As grandparents, parents, brothers and sister, we could not ever imagine Pyrene without her long hair.

But then one morning several months ago, she said that she wanted to donate her hair to the kids who lost it due to cancer treatment. Saskia without hair had made such a lasting impression on her and she thought now was the time to cut it off and give it to the kids who need it most.
We though it was just a passing phase, but Pyrene was very determined and insisted for a very long time that her hair should be cut off.

So we researched the various hair donation options and finally choose "Variety, the Children's Charity" organisation to donate her long locks.
Obviously we choose "Chilli Hairsalon" (remember the one owned by Krista who also organised Saskia's fundraiser several years ago) to take the honors of using the scissors.

Last Saturday 17 December 2016 was the big day. The appointment was at 9am and we were all very excited, especially Pyrene. The next couple of photo's will speak for themselves as I cannot find the right words to describe it. It is obvious that we are very very proud of her and I am sure there will be a very lucky child wearing a wig from Pyrene's hair.

New scans and a wholelotmore!

Hey everyone it is Saskia!

I know it has been a long time since I last updated but there are so many new things that I have done that I never could do in hospital. I will tell you all about it in this update!

First before I go into detail about my new adventures I want to say that this week I will be having many tests and scans done like an MIBG scan, MRI scan, PFT’s and I can’t remember the rest of the names but I am a little nervous, as usual, for the scans but I know that whatever happens I will always have the amazing support I get from everyone.

Well one big major aspect of this year was me starting long distance education. I have to say that I love doing this schooling because all of the booklets include Christianity in some way which to me is really important for a learning mind. I haven’t found a sport to do yet but I’m slowly edging towards softball although I feel I wont be very good at it. My hair is also currently at my shoulders which makes me really ecstatic because finally after so long I can tie it up!
My best friend (Emma) and I made a waterslide out of tarp in the warm rain and it was so cool. Although we did get a few scratches from sliding into the fence but that was part of the fun.

Last weekend we went to a close friends wedding and it was my first attendance of a wedding. I thought it was absolutely beautiful to watch two people come together. I also wore an awesome dress that I love so much and had my hair in this fancy bun thing! Photo below, but my dad looks a bit grumpy. I can assure you he is not...... 

This morning I decided to paint a beach on my new canvas, testing out the paint. It started off looking really good but then my brush went wonky and it went downhill from there so now it looks like some sort of abstract art.

I’ve also got a project of building a treehouse in our backyard with Emma. Also another project of making one wall full of treasurable events in pictures. There is also a wall in my room that has tons of art which I am pretty proud of. I can’t wait for the whole wall to be covered in my art and others.

I know that I am going to have so much fun building so much more things like waterslides, treehouses, picture walls, art walls, and one day hopefully do up a kombi van (my dream car). I just want to say that so far I’m loving life.