Antibody Therapy #2

Second one done and dusted...The new cocktail of drugs she received made her temperature spike a lot. She reached 41.5 degrees (or just under 107F). This made the doctors decide to suspend the treatment for several hours each day in order to keep her temperature and her blood pressure under control.
She was allowed home on Saturday 20 September, but again extremely tired.
This last week her uncle Shaun stayed most of the days with her, which she enjoyed a lot. I took most of the night shifts. Saskia was wondering why Melanie did not stay with her. We could not tell her at that time, but Melanie was busy every day to transfer Saskia's bedroom into something new and refreshing. Ikea had given us a voucher to be spend on Saskia and we bought a new high bed for her, re-decorated her walls (painting and wallpaper) and gave her cupboard a make over as well. It looks absolutely fantastic and the look on Saskia's face when she saw it for the first time was priceless.
She starts to feel now as well that she is nearly at the finish line and that the count down can actually start.
3 more hospital stays and then we're done!
In God we trust.

New Experiences

Two weeks have passed since Saskia got home and all is good. She is still very quickly tired and lost most of her appetite, but we can cope with that. Another side effect is that her skin gets very dry, mainly around her mouth and eyes. But now that the end is in sight, everything gets more bearable.
Last Monday Saskia had to go for an overnight stay to see how she would react on a mobile pump. The drug she gets now does not have any nasty side effects, but it need to be administered in a constant supply.
So she now walks around with a backpack which contains an electronic pump...
Saskia can't be bothered too much anymore. We reckon she has gone through so much, that she takes everything as it comes. And that is exactly the only way to cope with it.

Next week she will be again the whole week in hospital for another antibody treatment.
Nearly there...