New Experiences

Two weeks have passed since Saskia got home and all is good. She is still very quickly tired and lost most of her appetite, but we can cope with that. Another side effect is that her skin gets very dry, mainly around her mouth and eyes. But now that the end is in sight, everything gets more bearable.
Last Monday Saskia had to go for an overnight stay to see how she would react on a mobile pump. The drug she gets now does not have any nasty side effects, but it need to be administered in a constant supply.
So she now walks around with a backpack which contains an electronic pump...
Saskia can't be bothered too much anymore. We reckon she has gone through so much, that she takes everything as it comes. And that is exactly the only way to cope with it.

Next week she will be again the whole week in hospital for another antibody treatment.
Nearly there...