Saskia meanwhile has done very well. She feels very good, healthy and is counting down the hospital visits. She is doing relatively well at school. Obviously she missed out on many lessons, but together with her school, main teacher and home school teacher, Saskia managed to keep up with science and maths, which is actually pretty amazing considering the time she spend away from school. Her school has already indicated that as long as she shows an eagerness and willingness to learn, she will progress to year 8! Yeah. Saskia feels so much more confident about herself and her future and it is great to see here develop like this. All her siblings feel a lot better now as well so they made a collective selfie..
And if you have followed this blog for a while, you would know that Saskia's grandparents from Singapore live-in with us and were awaiting their permanent residency. And although it has taken a while, they have finally got it! They arrived back in Australia yesterday 9 November as PR.
Meanwhile, Saskia has managed to develop a little talent for playing piano... From a family unbeknown to us we received a beautiful antique piano. Originally build in Berlin by G. Schwechten around 1910/1918, we think it was brought to Australia somewhere after the second world war.
As a piece of furniture, it is absolutely beautiful and the sound is just mesmerizing (not when I play it though....). Pyrene has piano lessons at school and is doing very well, but Saskia has shown a real potential for it as well. She taught herself to play various songs and if the video-link here works, you should be able to hear it as well (the piano on the video is courtesy from the hospital).
The treatment meanwhile is still progressing. There are two more hospital visits left to go. She is now admitted for one of them and with a little luck she is out by Friday. Then three weeks of pills and injections, followed by her last hospital treatment somewhere early December. Her final pill and injection treatment should be over around her 13th birthday on 15 January. That will most likely be followed with an arrange of tests, but the full treatment should be over by January.
Throughout all this time, the last 3 years, but more particularly the last year and a bit, we have been carried by our faith, our family and our friends and colleagues on practical, emotional, spiritual and financial aspects. I am sure I will write a piece somewhere next year to try to put to words what it was like looking from a "rearview mirrow' perspective, but for now we are immeasurably grateful for the blessings we have received throughout this period.
Please do continue to keep her and us in your prayers as we move through the last stages of the journey.
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