Home Sweet Home

Excuses for a little late update, but we had a couple of very busy days. Saskia was finally well enough to come home last Monday. Over the course of the previous days, her pain relieve was slowly reduced and was completely disconnected on Sunday. This caused some issues over the course of the following days, as her body was used to a constant supply of sedation drugs, which was no longer there, which caused a great deal of restlessness. Thank God for good books! Only when we read "Black Beauty" to her she managed to get to rest and fall asleep...
So Monday was the day. The doctor mentioned that if Saskia managed to eat something and keep it in, he would allow her to go home. She was so nervous that the first bite she took she had to vomit out. Poor girl, she was desperate to come home but could not keep much in due to the anxiety. In the end she managed to eat 3 bites of an apple and that was enough to get her home.
Obviously she has only limited energy to do anything. She can hardly walk, so we got her a wheelchair. She sleeps a lot of little sleeps, but manages to slowly get back to her usual self. She eats and drinks a lot more now, although she says that all the tastes have changed. Her spirits have lifted dramatically and today she was actually smiling most of the day. That's how we like it!

Saskia is blessed with such a strong and beautiful spirit, it is amazing. We have never seen anyone of any age so sick as she was and I hope and pray that she will never have to go through something like this again. The transplant was necessary in order to replace her bone marrow. In order to replace her bone marrow, the old one had to be wiped out. We can read about it what this will do to your body and try to prepare for it, but to witness this happening on our very own child is something that I cannot describe as words will fall short. It were the most horrifying weeks we have had as parents. But thank God this is behind her and us now.
She's on the road of recovery and that is all that matters.